If you or someone you care for are unable to work or have other difficulties or needs because of your dystonia you may be eligible for financial support.

The type and level of support will depend on your personal circumstances. We recommend contacting your local Citizens Advice Bureau for advice on what you may be eligible for or to use the Turn 2 Us benefits calculator.

Types of support

The main types of financial support for people living with dystonia are:

Universal Credit	You may be able to get it if you are on a low income or out of work.
Personal Independence Payment (PIP)	Can help you with some of the extra costs if you have long-term ill-health or disability.
Disability Living Allowance (DLA)	Support to help with the extra costs of looking after a child under 16 who has additional needs.
Disabled Students' Allowance (DSA)	Support to cover study-related costs incurred because of a mental health problem, long term illness or any other disability.
Access to Work	Can help cover costs relating to your work that your employer does not cover.

 

Individual grants

Dystonia UK unfortunately does not distribute grants, but there are a small number of charities that can offer grants to people in need. You can use this grant finding tool to see if you may be eligible or take a look at the Disability Grants website.

Disability Rights UK also run two helplines that you can email or call for more advice.

More support