What should I do if I think I have dystonia? Expand If you think you may have dystonia, it is always best to discuss this with your GP. If necessary, they will refer you to a neurologist specialising in movement disorders, an ophthalmologist, or ear, nose, and throat specialist depending on your suspected type of dystonia.
Do I have dystonia? Expand Only a medical professional can confirm if you have dystonia. If you think you may have dystonia it is always best to discuss these concerns with your GP. The team at Dystonia UK are not medically qualified to diagnose dystonia.
I think I have dystonia, but I am struggling to get a diagnosis, what can I do? Expand It can sometimes take a long time to get a diagnosis as the symptoms of dystonia can be similar to those of other conditions, and it is often a question of ruling these out first before arriving at a diagnosis. To help you can: show your GP the pages from our website that feature the same symptoms you are experiencing ask your GP if you can be referred to a hospital that diagnoses and treats dystonia ask for a second opinion at your GP practice if possible, contact a private practitioner specialising in movement disorders and enquire whether they will see you
How can I find out which UK hospitals or clinics near me diagnose dystonia? Expand Head to our treatment centres page. Use the map of services on the website run by the British Neurotoxin Network.
How can I find a private practitioner? Expand You (or someone on your behalf) can search online using the following suggested search terms: Private neurologist dystonia (+ your geographical location, e.g. Bristol) Private movement disorder specialist (+ your geographical location) Private movement disorder specialist (+ the type of treatment you are seeking, e.g. botulinum toxin for dystonia + your geographical location) Once you have found some possibilities, we recommend calling them to find out more about the practitioner's specific knowledge of dystonia, and to check the cost of an initial consultation, tests and follow ups.