Can I help start a new group?

We’re always keen to hear from people who want to strengthen the dystonia community, but starting a new group is a big step, and we want to get it right.

We’re currently working on a long-term strategy to grow and support our UK-wide network in a way that’s sustainable, inclusive, and shaped by the needs of our community. That means any decisions about launching new groups are made carefully, with a focus on what will truly benefit those who rely on our services.

If you're passionate about helping others and would like to explore the idea of starting a group in your area, we’d love to hear from you. While we can’t guarantee we’ll be able to move forward straight away, your interest will help shape the future of our support network.