How do I share my story? Expand Thank you for considering sharing your story with others. Your stories are the most powerful and true account of what living with dystonia is like. We want you to share your story in your own time and your own way, but if you’re wondering about some of the practicalities, here are some handy tips.
How do I contact you? Expand If you have a question that isn't on our FAQs page or want to get in touch with us for another reason, we'd love to hear from you! To ensure your message reaches the right person and you get the speediest response from us, please contact the relevant department below: 📧General enquiries / feedback: [email protected] 📖Help & Information: [email protected] 💷Fundraising: [email protected] 🥳Events: [email protected] 💜Membership: [email protected] You can also leave us a voicemail on 📞 020 7793 3651 📞 or even send us a letter ✉️ Dystonia UK, 3rd Floor, 89 Albert Embankment, London, SE1 7TP ✉️ Please note the Dystonia UK team are not medically qualified so it is always best to direct these types of questions to your GP or primary medical team. Current response time: All our enquiries are triaged by a member of the team and directed to the most relevant member of staff. We respond to people as quickly as possible and response time may vary. We aim to respond to all enquiries within 1 month of receipt. If you have not had a response after 1 month, and would still like to speak to us, please accept our apologies and do contact us again. If you require emergency help do not delay reaching out. Call 999 or speak to someone 24/7 at Samaritans by calling 116 123.
How do I make a complaint? Expand We are really sorry you wish to make a complaint. We hope to resolve your concern as soon as possible. Let us know how we can help by: email ([email protected]) post (Dystonia UK, 3rd Floor, 89 Albert Embankment, London, SE1 7TP) telephone (020 7793 3651) Response time: We aim to acknowledge any complaints within 1 week of receipt. We aim to complete any investigations required to resolve a complaint within 16 weeks.