Who can attend a local group? Expand Anyone affected by dystonia is welcome- whether you’re living with the condition, supporting someone who is, or newly diagnosed. Friends, family members, and carers are encouraged to come along too.
What happens at a meet up? Expand Every group is different, but you'll typically find: Friendly faces, warm hellos and a chat over tea or coffee Inspiring personal stories and practical advice Occasional guest speakers: physiotherapists, neurologists, or other specialists Social activities that lift spirits and strengthen friendships from garden walks to festive meals Please note: There’s never any pressure to speak- you’re welcome to just listen and soak it all in.
Do I need to book in advance? Expand No- most of our meet ups don’t require booking, you can just turn up. If booking is needed, we’ll make that clear on the listing.
How much does it cost? Expand We want our meet ups to be accessible to everyone, regardless of their financial situation. That’s why our meetings are completely free to attend. If you’re able to, donations are always appreciated to help cover things like room hire or refreshments, but there’s no pressure.
Can I bring someone with me? Expand Absolutely! Whether it’s a partner, friend, family member, or carer, you’re welcome to bring someone along for support.
Do I need to be a Dystonia UK member? Expand No, our support groups are open to everyone affected by dystonia, whether you’re living with it, family or friend. You don’t need to be a member (though we’d love to have you!).