Together, we are committed to increasing the number of dystonia research studies, improving outcomes, and growing the involvement of people living with dystonia. Research has the power to change lives - and while there is currently no cure, we believe that sustained support and collaboration will move us closer to that day.
Everyone can play a part in supporting dystonia research. By staying informed, sharing your experiences, or taking part in studies, you help researchers gain the insights they need to drive progress. Our Research Network brings together people who want to stay connected with developments in the field and hear about opportunities to get involved.
By signing up, you’ll receive regular research roundups, updates from the research community, and invitations to take part in studies when opportunities arise.
You can:• Learn more about dystonia research and connect with the scientists behind it• Share your views on what research is needed and how it is carried out• Take part in clinical studies and trials
Research studies come in many forms. Some simply involve sharing your experiences through interviews or surveys, while others may involve meeting medical professionals, joining focus groups, or taking part in structured clinical research. Every contribution, big or small, is valuable.
Sign up to the Dystonia UK Research Network today and be part of shaping the tomorrow of dystonia research.
For anyone who has a form of dystonia or is related by blood to someone who does. Read more
Explore the latest dystonia research news, projects, and findings shaping understanding, treatment, and future care. Read more
Read a real world example from our Director of Operations and Development as they describe taking part in a recent research study. Read more