We use surveys and government consultations to collect important data that form key evidence in reports and other influencing work that we produce.
It is so important that the voice of those living with dystonia is represented in this work so we will often share these opportunities with our community.
If you are interested in supporting this work and making your voice heard, please take a moment to look at the surveys open to take part in below.
For air travel passengers with accessibility needs, including those with dystonia. Takes 2 minutes (quick survey) or 10-15 minutes (full survey). Read more
For anyone living with dystonia. Takes 15-25 minutes. Read more
For anyone who has a form of dystonia or is related by blood to someone who does. Read more
For children & young people with dystonia and those who are involved in the care of a child with dystonia. Takes at least 10 minutes. Closing date mid-April 2024 (TBC). Read more