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  • Dystonia Awareness Month - Get involved!
  1. Support us
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  3. Dystonia Awareness Month
  4. Dystonia Awareness Month - Get involved!

Dystonia Awareness Month - Get involved!

If you’re thinking about being involved in raising awareness of dystonia in September 2026, there are plenty of ways you can help.

Don't forget to tag us @DystoniaUK and #DystoniaAwarenessMonth on all the social media platforms you use and/or send your photos to [email protected] for us to use and share.

Buy, wear, share!

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  1. Buy a piece of Dystonia UK merchandise.
  2. Proudly wear your new purchase.
  3. Snap a shot and share it with us on social media (@DystoniaUK) or by email.

Published: 1st August, 2023

Updated: 19th October, 2023

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Landmark light ups

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Know a building that can be lit up? Maybe a local monument, your place of work, or even your very own home!

We want to light up the UK with the iconic dystonia green so let us know if you have a contact we can chat to or if you've been able to organise a light up yourself.

Published: 3rd August, 2023

Updated: 19th October, 2023

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Like, share and repost

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Throughout the whole of September we'll be posting about dystonia, personal stories, events, activities and how to get involved in awareness month.

Please support our work by liking, sharing and reposting to help spread the word that dystonia matters. 

Please tag us @DystoniaUK and #DystoniaAwarenessMonth so we can see your posts!

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Published: 4th August, 2023

Updated: 19th October, 2023

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Your voice heard

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There are lots of ways to have your voice heard during awareness month...

  1. Contact your local radio station
  2. Contact your local newspaper
  3. Share your story
  4. Take part in a survey

Published: 6th August, 2023

Updated: 19th October, 2023

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Put up a poster

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Spread the message to let people know what dystonia is with our awareness month posters. Suitable to put up in your local area or clinic, take to an event or give to friends & family.

Request your poster pack here!

 a square infographic poster explaining what is dystonia?

Published: 9th August, 2023

Updated: 13th May, 2024

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020 7793 3651

Dystonia UK is the operating name of The Dystonia Society. The Dystonia Society is registered as a charity in England and Wales (1062595) and in Scotland (SC042127)

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