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  • Dystonia Matters Live 2026
  1. Help and support
  2. Our events
  3. Dystonia Matters Live 2026

Dystonia Matters Live 2026

Join Dystonia UK in the country's capital in 2026 for the largest event for people living with dystonia in the UK!

London's calling! Hosted across 2 days at the Radisson RED in West London, Dystonia Matters Live 2026 will be bringing our popular Dystonia Matters magazine to life with interactive and innovative sessions on 'The Main Stage' and 'The Acoustic Stage.' Featuring guest speakers, from medical experts to community champions, we'll be talking about treatments, mental health, and living well with dystonia. Designed for everyone - adults, professionals, kids, carers & families - the event offers plenty of time to connect and explore multimedia rooms, exhibition stands, and more!

So what are you waiting for? Click on the button below to book your place today - we can't wait to see you there!

Got a question? Check out the FAQs below.

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Latest

  • A warm welcome to our new CEO

    A warm welcome to our new CEO

    22/05/2026 | The Board of Trustees is pleased to announce the appointment of our new Chief Executive Officer, Alex Feis-Bryce.

  • Alex Feis-Bryce

    Alex Feis-Bryce

    Chief Executive Officer

  • TCS London Marathon 2027

    TCS London Marathon 2027

    Event type: UK Race. Date: 25th April 2027. Location: UK. Registration fee: £75. Fundraising target: £2,500.

  • TCS London Marathon 2027

    TCS London Marathon 2027

    Event type: UK Race. Date: 25th April 2027. Location: UK. Registration fee: £75. Fundraising target: £2,500.

Most read

  • What is dystonia?

    What is dystonia?

    Dystonia is a neurological condition that is estimated to affect at least 100,000 people in the UK. Learn more about it here.

  • What are the symptoms?

  • What causes dystonia?

    What causes dystonia?

    The cause of dystonia is not yet fully understood, in some cases at least it can be attributed to a chemical imbalance in the part of the brain called the basal ganglia, a part which helps to control movement.

  • What are the symptoms?

  • What are the symptoms?

  • What are the common treatments?

  • What are the causes?

  • What are the common treatments?

  • What are the causes?

  • Who does it affect?

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020 7793 3651

Dystonia UK is the operating name of The Dystonia Society. The Dystonia Society is registered as a charity in England and Wales (1062595) and in Scotland (SC042127)

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