Skip over main navigation
  • Log in
  • Basket: (0 items)
Dystonia UK
  • Twitter
  • Facebook
  • Instagram
  • YouTube
Membership Donate
Menu
  • About dystonia
    • What is dystonia?
    • What causes dystonia?
    • Types of dystonia
    • Diagnosis and treatment
  • Help and support
    • How we support you
    • The Info Hub
    • Just diagnosed
    • Kids, Carers & Families
    • Living with dystonia
    • Your stories
    • Your local support group
    • Our events
    • Frequently asked questions
  • Membership
    • Dystonia UK Membership
    • Join or renew your membership
  • Support us
    • Donate
    • Become a member
    • Fundraise for us
    • Other ways to give
    • Partner with us
    • Volunteer for us
    • Campaigns
    • Your voice heard
    • Shop
  • About us
    • Who we are
    • The team
    • Our governance
    • Policy work
    • Research
    • Professionals
    • News
  • Admin
    • Log in
  • Basket: (0 items)
  • Fundraising and volunteering FAQs
  1. Help and support
  2. Frequently asked questions
  3. Fundraising and volunteering FAQs

Fundraising and volunteering FAQs

How do I let you know about my fundraising plans / event?

Expand

We're so excited you're organising a fundraising event to support our work, thank you! Simply register and one of our fabulous fundraising team will contact you or give us a call on 020 7793 3651.

We can't wait to hear what you've got planned!

Published: 2nd June, 2021

Updated: 5th March, 2026

Author:

Share this page
  • Email
  • Facebook
  • Twitter

Can you share my fundraising event on social media?

Expand

Yes of course! We love to share what our amazing community is up to.

Simply tag us on our social media accounts (@DystoniaUK) or send our fundraising team an email with some photos and updates for us to share.

Published: 3rd June, 2021

Updated: 13th July, 2021

Author:

Share this page
  • Email
  • Facebook
  • Twitter

How do I pay in money I have raised through a fundraising event?

Expand

Thank you for supporting Dystonia UK!

If you have set up your own fundraising page using an online platform, that people can donate directly to, the funds raised are automatically transferred to us so you don't need to do a thing!

Otherwise there are two simple ways to pay in your fundraising money:

  • Bank transfers can be made using the details:

    Account Name: The Dystonia Society
    Sort Code: 40-52-40
    Account Number: 00003759

    (Please email [email protected] to confirm your contact details, the amount transferred and information about your event.)

  • Cheques made payable to Dystonia UK can be sent to:

    Fundraising Team, Dystonia UK,
    3rd Floor, 89 Albert Embankment,
    London, SE1 7TP

    (Please include a note with your name, contact details and information about your event.)

Published: 4th June, 2021

Updated: 2nd March, 2022

Author:

Share this page
  • Email
  • Facebook
  • Twitter

How do I get a fundraising pack?

Expand

We are delighted you would like to start fundraising for Dystonia UK. To get your very own fundraising pack simply register, and one of our lovely team will get back to you. We can send you the pack by email, or print it and post a copy out to you.

Published: 5th June, 2021

Updated: 17th March, 2023

Author:

Share this page
  • Email
  • Facebook
  • Twitter

What do I do if I haven't received my fundraising pack?

Expand

If you haven't received your fundraising pack yet send us an email and one of our lovely team will get back to you. If you need us to print it for you let us know and we can post a copy out to you.

Published: 6th June, 2021

Updated: 12th July, 2021

Author:

Share this page
  • Email
  • Facebook
  • Twitter

How can I become a volunteer?

Expand

It's amazing that you want to be a volunteer and support our work with your time. To find out what current roles we have available, head to our volunteer for us page.

If there isn't a role you're interested in or there are no open roles at the time, you can still send in your details to be considered for upcoming positions. Simply download our volunteer form and send it in by email or post.

Published: 15th June, 2021

Updated: 13th November, 2025

Author:

Share this page
  • Email
  • Facebook
  • Twitter
Back to top

Latest

  • A warm welcome to our new CEO

    A warm welcome to our new CEO

    22/05/2026 | The Board of Trustees is pleased to announce the appointment of our new Chief Executive Officer, Alex Feis-Bryce.

  • Alex Feis-Bryce

    Alex Feis-Bryce

    Chief Executive Officer

  • TCS London Marathon 2027

    TCS London Marathon 2027

    Event type: UK Race. Date: 25th April 2027. Location: UK. Registration fee: £75. Fundraising target: £2,500.

  • TCS London Marathon 2027

    TCS London Marathon 2027

    Event type: UK Race. Date: 25th April 2027. Location: UK. Registration fee: £75. Fundraising target: £2,500.

Most read

  • What is dystonia?

    What is dystonia?

    Dystonia is a neurological condition that is estimated to affect at least 100,000 people in the UK. Learn more about it here.

  • What are the symptoms?

  • What causes dystonia?

    What causes dystonia?

    The cause of dystonia is not yet fully understood, in some cases at least it can be attributed to a chemical imbalance in the part of the brain called the basal ganglia, a part which helps to control movement.

  • What are the symptoms?

  • What are the symptoms?

  • What are the common treatments?

  • What are the causes?

  • What are the common treatments?

  • What are the causes?

  • Who does it affect?

Tag cloud

Airdrie DS Group Cambridgeshire DS Group Edinburgh DS Group Hertfordshire DS Group Kent DS Group Lancashire & Fylde DS Group Liverpool DS Group London and Surrey DS Group Manchester DS Group North East DS Group North Shropshire Borders DS Group Northern Ireland DS Group Oxford DS Group Torbay & Exeter DS Group West Midlands DS Group West Sussex DS Group

Subscribe to receive regular e-news from Dystonia UK

* indicates required
  • Sitemap
  • Terms & Conditions
  • Privacy Policy
  • Update your communication preferences


  • Twitter
  • Facebook
  • Instagram
  • YouTube

Registered office

89 Albert Embankment
London SE1 7TP
[email protected]
020 7793 3651

Dystonia UK is the operating name of The Dystonia Society. The Dystonia Society is registered as a charity in England and Wales (1062595) and in Scotland (SC042127)

Help Dystonia UK

Donate Volunteer Fundraise