Skip over main navigation
  • Log in
  • Basket: (0 items)
Dystonia UK
  • Twitter
  • Facebook
  • Instagram
  • YouTube
Membership Donate
Menu
  • About dystonia
    • What is dystonia?
    • What causes dystonia?
    • Types of dystonia
    • Diagnosis and treatment
  • Help and support
    • How we support you
    • The Info Hub
    • Just diagnosed
    • Kids, Carers & Families
    • Living with dystonia
    • Your stories
    • Your local support group
    • Our events
    • Frequently asked questions
  • Membership
    • Dystonia UK Membership
    • Join or renew your membership
  • Support us
    • Donate
    • Become a member
    • Fundraise for us
    • Other ways to give
    • Partner with us
    • Volunteer for us
    • Campaigns
    • Your voice heard
    • Shop
  • About us
    • Who we are
    • The team
    • Our governance
    • Policy work
    • Research
    • Professionals
    • News
  • Admin
    • Log in
  • Basket: (0 items)
  • Dystonia Matters Podcast Season Three
  1. Support us
  2. Campaigns
  3. Reach Out, Reach All
  4. Dystonia Matters Podcast
  5. Dystonia Matters Podcast Season Three

Dystonia Matters Podcast Season Three

We're delighted to launch season three of our popular ‘Dystonia Matters Podcast’.

Throughout this series, we'll be sharing even more of your stories as we chat to members of the dystonia community about why dystonia matters.

Dystonia Matters Podcast logo

Our podcasts are all about sharing your stories and hearing from the community. We know how important it is to hear other people’s stories and know you are not alone. Podcasts allow us to literally share your voices.

One supporter said, “I've listened to the podcast... and cried. It is wonderful to realise you're not alone and agree that it would be lovely to get to the point where people don't say 'What IS dystonia?'"

Check out the released episodes of below. Subscribe now on Spotify or Apple Podcasts and all major podcasting platforms.

Dystonia Matters and so does your voice, so if you would like to share your story, please pop us an email and a member of the team will contact you.

Donate £1 to support the dystonia community today


Donate £1 today to support the work of Dystonia UK. Your donations will make such a difference including giving our community the opportunity to share their stories on our Dystonia Matters podcast! We aim to raise £100,000, one pound for every person in the UK thought to be affected by dystonia. 

Episode 1: Tajana's story

Episode 1: Tajana's story

Dayna chats to Tajana about her dystonia story. Read more

Published: 3rd April, 2023

Updated: 15th May, 2023

Author: Bernie McMahon

Episode 2: Beccy's story

Episode 2: Beccy's story

Dayna is joined by the fabulous Beccy! Read more

Published: 2nd June, 2023

Author: Bernie McMahon

Episode 3: Katie's story

Episode 3: Katie's story

Katie joins Dayna to talk openly about her dystonia journey. Read more

Published: 25th September, 2023

Author: Victoria Wareham

Episode 4: Claire's story

Episode 4: Claire's story

In episode 4 we were joined by the super talented Paralympic Boccia champion - Claire Taggart. Read more

Published: 8th December, 2023

Updated: 15th December, 2023

Author: Bernie McMahon

Back to top

Latest

  • A warm welcome to our new CEO

    A warm welcome to our new CEO

    22/05/2026 | The Board of Trustees is pleased to announce the appointment of our new Chief Executive Officer, Alex Feis-Bryce.

  • Alex Feis-Bryce

    Alex Feis-Bryce

    Chief Executive Officer

  • TCS London Marathon 2027

    TCS London Marathon 2027

    Event type: UK Race. Date: 25th April 2027. Location: UK. Registration fee: £75. Fundraising target: £2,500.

  • TCS London Marathon 2027

    TCS London Marathon 2027

    Event type: UK Race. Date: 25th April 2027. Location: UK. Registration fee: £75. Fundraising target: £2,500.

Most read

  • What is dystonia?

    What is dystonia?

    Dystonia is a neurological condition that is estimated to affect at least 100,000 people in the UK. Learn more about it here.

  • What are the symptoms?

  • What causes dystonia?

    What causes dystonia?

    The cause of dystonia is not yet fully understood, in some cases at least it can be attributed to a chemical imbalance in the part of the brain called the basal ganglia, a part which helps to control movement.

  • What are the symptoms?

  • What are the symptoms?

  • What are the common treatments?

  • What are the causes?

  • What are the common treatments?

  • What are the causes?

  • Who does it affect?

Tag cloud

Airdrie DS Group Cambridgeshire DS Group Edinburgh DS Group Hertfordshire DS Group Kent DS Group Lancashire & Fylde DS Group Liverpool DS Group London and Surrey DS Group Manchester DS Group North East DS Group North Shropshire Borders DS Group Northern Ireland DS Group Oxford DS Group Torbay & Exeter DS Group West Midlands DS Group West Sussex DS Group

Subscribe to receive regular e-news from Dystonia UK

* indicates required
  • Sitemap
  • Terms & Conditions
  • Privacy Policy
  • Update your communication preferences


  • Twitter
  • Facebook
  • Instagram
  • YouTube

Registered office

89 Albert Embankment
London SE1 7TP
[email protected]
020 7793 3651

Dystonia UK is the operating name of The Dystonia Society. The Dystonia Society is registered as a charity in England and Wales (1062595) and in Scotland (SC042127)

Help Dystonia UK

Donate Volunteer Fundraise