There are lots of ways to get involved with Dystonia UK - whether you have a few hours to spare or want to take on a longer-term role. Every volunteer helps us raise awareness, support people living with dystonia, and strengthen our community.

Explore the opportunities below to find something that’s right for you.

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Occasional opportunities

If you’d like to get involved but can’t commit long term, our occasional roles are perfect. These one-off activities are a great way to give something back, meet new people, and try something different, even if you only have a little time to spare. Examples include:

• Event helpers
  We host fundraising, awareness, and support events throughout the year, and they take a team effort to run! You could help with event prep, logistics, or even cheer on our marathon runners.

• Awareness ambassadors
  Help us spread the word about dystonia by delivering information materials to local clinics or treatment centres — simple but powerful work that helps raise awareness where it’s needed most.

• Story sharers
  Sharing your experience can make a huge difference. Your story might help someone feel less alone, understand a diagnosis, or find hope. You can share through events, our Dystonia Matters magazine, or our podcast.

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Longer-term roles

Some roles involve a longer commitment and specific skills. These opportunities are ideal if you can give more time and want to play a key part in shaping our work and supporting the dystonia community. Examples include:

• Office heroes
  Our London office is a lively hub powered by a small but mighty team. Office heroes help with administration, fundraising, and projects helping us make an even bigger impact.

• Group coordinators
  Our support groups have been at the heart of Dystonia UK for over 40 years. They’re all volunteer-led, with guidance from our staff team. You could support an existing group or help start a new one in your area.

• Trustees
  Our Board of Trustees is made up entirely of volunteers who help guide the charity’s direction and ensure good governance. Trustees are elected by our members for a three-year term and play a vital role in shaping our future.

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