If volunteering isn’t for you, but you still want to support our work, there are plenty of other ways to make a difference.

Fundraising

You could take part in an event to raise vital funds for Dystonia UK, and don't worry not all of them involve running a marathon! From bake sales and walks to challenge events and online campaigns, there are so many ways to get involved and have fun while making an impact.

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Become a member

Joining Dystonia UK is a simple but powerful way to show your support. As a member, you’ll be part of a growing community raising awareness, providing support, and driving change for people affected by dystonia. Membership is open to everyone - whether you have dystonia, care for someone who does, or simply want to stand with our community.

Members receive regular updates, invitations to events, and the opportunity to help shape our future through voting rights at our AGM. Your membership helps us continue our vital work and strengthens the collective voice of the dystonia community. 

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Research

We’re proud to support and connect the passionate people leading dystonia research through our Dystonia UK Research Network - a growing community of individuals and experts working together to find better treatments and, one day, a cure.

By joining, you can stay up to date with the latest research, share your experiences, and take part in studies and trials that could shape the future of dystonia care.

Simply drop us an email to sign up today and be part of our research network.