Where can we take you next?

Listen to the Dystonia Matters Podcast with Emma

Find a support group meet up near you

Take part in the London Marathon 2027

Become a member


Dystonia UK

Home page

Contact us

Buy Dystonia UK merchandise

Become a member

Learn more about our policy work


Attend an event

Find a support group meet up near you

Find out more about our Hospital Roadshows

Take a look at all upcoming events


Get involved

Donate just £1

Become a member

Take part in a challenge event for Dystonia UK!

Register to receive a DIY Fundraising pack

Share your story

Shop with Give as you Live


Find information and support

Explore The Info Hub

Frequently asked questions

Watch recordings of our past 'Reach Out, Reach All' webinars

Watch recordings of sessions from Dystonia Matters Live 2023

Catch up on all episodes of the Dystonia Matters Podcast

Catch up on all episodes of Dystonia Animated

Read stories from the dystonia community

Check out our digital 'What is dystonia?' booklet 

Request a FREE copy of What is dystonia? booklet

Brand new Kids, Carers & Families area


Can't find the link you were looking for? Pop us an email at [email protected] and we'll be happy to help.