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  • Supporting our work
  1. About us
  2. Professionals
  3. Supporting our work

Supporting our work

We’re incredibly proud to work with a brilliant network of consultants, specialist nurses, allied health professionals and many others who champion people living with dystonia every day.

There are lots of ways to get involved in our work, whether you’d like to support us more generally or use your specialist dystonia expertise to help amplify the voices of our community.

If you’ve got specialist dystonia knowledge, you could:

  • Speak at one of our local meet ups or national events
  • Present during one of our Reach Out, Reach All webinars
  • Write an article for our Dystonia Matters magazine
  • Help us share and explain new research
  • Support the design and delivery of a specific project
  • Host a Hospital Roadshow alongside your clinic to engage patients, staff, and the public

Your insight and expertise make a real difference to people living with dystonia. If you’re interested in getting more involved, we’d love to hear from you. Contact Penny Richie Calder, our Vice Chair of the board, [email protected].

There are also plenty of general opportunities to support our work and we always love seeing members of our medical network get involved!

Become a member

Become a member

Join Team Dystonia UK as a member if, like us, you think dystonia matters. Read more

Published: 29th January, 2021

Updated: 18th February, 2026

Author: Bernie McMahon

Explore volunteering roles

Explore volunteering roles

There are plenty of different ways you can volunteer to support our work and help improve the lives of people living with dystonia. Read more

Published: 21st May, 2020

Updated: 4th December, 2025

Author: Bernie McMahon

Fundraise for us

Fundraise for us

Take part in one of our events or organise your own – it could be the most fun you have all year. Read more

Published: 25th March, 2021

Updated: 3rd December, 2025

Author: Bernie McMahon

Sign up to our e-news

Sign up to our e-news

To get tailored news and updates for professionals straight to your inbox simply sign up to our professional e-newsletter. Read more

Published: 3rd December, 2025

Author: Victoria Wareham

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Latest

  • A warm welcome to our new CEO

    A warm welcome to our new CEO

    22/05/2026 | The Board of Trustees is pleased to announce the appointment of our new Chief Executive Officer, Alex Feis-Bryce.

  • Alex Feis-Bryce

    Alex Feis-Bryce

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    Event type: UK Race. Date: 25th April 2027. Location: UK. Registration fee: £75. Fundraising target: £2,500.

  • TCS London Marathon 2027

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    Event type: UK Race. Date: 25th April 2027. Location: UK. Registration fee: £75. Fundraising target: £2,500.

Most read

  • What is dystonia?

    What is dystonia?

    Dystonia is a neurological condition that is estimated to affect at least 100,000 people in the UK. Learn more about it here.

  • What are the symptoms?

  • What causes dystonia?

    What causes dystonia?

    The cause of dystonia is not yet fully understood, in some cases at least it can be attributed to a chemical imbalance in the part of the brain called the basal ganglia, a part which helps to control movement.

  • What are the symptoms?

  • What are the symptoms?

  • What are the common treatments?

  • What are the causes?

  • What are the common treatments?

  • What are the causes?

  • Who does it affect?

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89 Albert Embankment
London SE1 7TP
[email protected]
020 7793 3651

Dystonia UK is the operating name of The Dystonia Society. The Dystonia Society is registered as a charity in England and Wales (1062595) and in Scotland (SC042127)

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