Find out more about the Manchester Metropolitan University study from our Director of Operations & Development who recently took part…

On a sunny Friday in May, our Fundraising Officer, Sarika, and I travelled up to Manchester to visit Professor Ian Loram and his team at MMU where the research is being conducted. The purpose of the visit was to discuss the study’s progress so far and gain an insight into the process participants would be involved in. And what better way to find out  than to take part in the study ourselves!

The data is being collected in a lab in the Institute of Sport, a wonderfully contemporary building right in the heart of the university part of the city, which is where we met Professor Loram and his Research Associate, Chuin Hong Yap. Having enjoyed a cup of tea and filled in forms we were whisked off for an MRI scan of our head and necks.

This was a very positive experience. While I’m fortunate enough to say none of my previous MRI experiences through the NHS have been poor, there was a noticeable difference in the time the radiographer could take with us to explain how the MRI machine works and to ensure we had maximum comfort, making this quite a novel experience. Wrapped up in a blanket to keep warm and with a TV to watch while being scanned, I found myself a little disappointed when it was all over, although no one was more sorry it was finished than Sarika who took the chance to have a little nap! Don’t just take our word for how relaxing it is…

“I must admit I was feeling quite anxious on the day particularly as I have never undergone an MRI scan and do experience slight claustrophobia. I cannot praise the radiographer enough. They explained the whole MRI process with clarity and patience and made me feel that I was in safe hands. I thank them unreservedly for their kindness. I was able to take deep breaths and relax whilst listening to the radio during the scan.” Lesley

Once completed, we were shown the images of our brains (not something you see every day!) and we were then taken upstairs to complete the ultrasound. Whilst sat in a chair, Chuin expertly moved around our necks with the probe and copious amounts of gel as Professor Loram captured images of the movement of our muscles. Throughout, we were shown the muscle activity on a screen in front of us and had the chance to ask questions.

Neither Sarika or I have ever taken part in a research study before, but we both left feeling that not only had we contributed in some way to furthering the understanding of dystonia, but that we’d had an enjoyable and interesting time. The study needs more recruits and we hope that by hearing more about our experience, many of you may sign up to take part too.

“I am appealing to anyone reading this who is affected by Cervical Dystonia to take part in this research. Please get in touch with the team, they will call you and explain the procedure which takes about two hours in total. It is such a worthwhile thing to do and will benefit us all going forwards. Thank you.” Lesley

Update: This study is now closed for recruitment, but keep an eye out on our news page to find out more about other research opportunities in the future!

Published: 27th March 2025

Updated: 24th April 2025