We have in-person support groups across the UK, and we’d love to connect you with one nearby. 

How to find a local support group

1. Pop in your postcode in the search bar or view the full list of support groups below the map.
2. Only seeing your location on the map? Click on the 'map camera control' button in the bottom right corner to zoom out. This will reveal more nearby groups.
3. Got questions about our local support groups?  Check out our FAQs for everything you need to know.
4. Want to see all Dystonia UK events in one place? Take a look at our upcoming events. 

Frequently Asked Questions

Don’t see a group near you?

We know how important it is to connect with others nearby- and we’re working on it.

We are currently developing a strategy to strengthen our support network across the UK. This means carefully balancing the needs of our community with the resources available to us, while also embracing the opportunities and challenges that the modern world and digital advancements present. These decisions take time as we want to ensure that any plans we make are sustainable and truly beneficial for those who rely on our services.

Read the full article about Strengthening the support network for our community.

While we may not have a group in your area just yet, there are still plenty of ways to connect right now:

• Join one of our online groups on Facebook
• Take part in our events
• Let us know you’re interested in local support- we’re listening, and your feedback helps guide our future plans

Can I help start a new group?

We’re always keen to hear from people who want to strengthen the dystonia community, but starting a new group is a big step, and we want to get it right.

We’re currently working on a long-term strategy to grow and support our UK-wide network in a way that’s sustainable, inclusive, and shaped by the needs of our community. That means any decisions about launching new groups are made carefully, with a focus on what will truly benefit those who rely on our services.

If you're passionate about helping others and would like to explore the idea of starting a group in your area, we’d love to hear from you. While we can’t guarantee we’ll be able to move forward straight away, your interest will help shape the future of our support network.